This Unknown Nutrient For Fibromyalgia, Chronic Pain & Neuropathy
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- Опубликовано: 12 апр 2025
- In this video we examine the evidence for small fiber neuropathy as a driver of fibromyalgia and other chronic pain disorders. We also look at a nutrient which can help to resolve the pain and restore nervous system function: Agmatine!!!
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I have fibromyalgia and osteoarthritis. My knees and fingers joints are all bone to bone . I’m almost 53. I take care of my 34 year old daughter with severe cerebral palsy. I’m in constant pain pretty much every.
No one can see my body’s problems therefore everyone thinks I’m fine. But I’m not. I grit my teeth so much I have broken many. I honestly feel alone people don’t understand and or care that I’m not ok. If I did not have my faith in Jesus I would have given up on life a long time ago. Prayers for you who are suffering in pain.
I have the same 2 diseases it's a nightmare. I'm sorry about your daughter. Prayers. We're almost Home. Stay Strong and Faithful ❤
My mother also has both of these conditions and whilst I am extremely understanding and empathetic towards her, a few of our family members are not and often dismiss her pain/suffering. It’s not fair, I wish people would understand how bad these conditions can affect people. Sending all my love, thoughts and prayers to you xxxxxxx
Have you been checked for Asperger's ADHD are you hypermobile the join can ware down earlier but that doesn't mean always mean pain check out TMS Dr schubiner
1. Eat Bone broth,
2. Drink cold lemon rind water
Drink the water and refill till rind gets soft. Do not throw it out!!
3. Bless your water
4. Take 2aspirin with 2 vit c together with
And hot strong coffee.
Do not take separately
I feel pain constantly also,,I'm praying for you.
For me one of the most most shocking things is , for years I’ve searched for answers from doctors….. instead I’ve ended up getting them from RUclips instead and for free. Very grateful 😊
A well person has no need of a physician.
@ yes true but sometimes the journey to wellness needs a helping hand
@whatwhyandwhos68 Point of interest...
"Pharmakeia", at its root, means "witchcraft, sorcery".
Nope. Not for me.
One must recognize it is wise to monitor the unforeseen....regardless of fitness/health. Preventive awareness significant. Fyi I for one, 70 years young 11/24 investigate,research symptoms prior to Dr visits that being Fibromyalgia, Neuropathy, Osteoporosis, etc. Dr. visits have purpose, however it is a crucial ... YOU MUST BE YOUR OWN DOCTOR AS WELL. Dr. drugs prescribed temporary fix not restorative. UTube valuable source in researching treatment. My story successful ... treatment includes self designed PT, food menu and array of complimentary supplements. I also find for me, it is a way of life embracing fulltime job.@@angelbulldog4934
You are right there.
In Canada, fibromyalgia is now classed as a neurological disorder. This, in turn, probably stems from a deeper systemic problem. Researchers in Italy have found that fibromyalgia patients suffer from malfunctioning or compromised mitochondria. This of course includes the mitochondria in the brain, the spinal cord and the entire nervous system (as well as every other cell in the body).
I would also like to recommend this book by
Daniel C. Dantini MD
"The New Fibromyalgia Remedy: Stop Your Pain Now with an Anti-Viral Drug Regimen."
I had already noticed my daily headaches went away when I took acyclovir. Now I manage EBV and HCMV with supplements.
I had intense pain throughout my body. My immunologist had me get a small fiber biopsy done. It didn't find anything. Dantini also said to address food sensitivities. I gave up gluten, foods high in nickel, and milk products. Goat milk was worse than cow. I had to give up even butter :-(
After watching Elliott's video, "Thiamine: A UNIVERSAL "Stress Protectant" Across The Natural World (Detailed Version)," I believe Thiamine is another way to defeat the Epstein-Barr Virus and other related herpes viruses.
This makes sense to what you said.
It is now classified as neurological in the US as well.
@@ParallaxView111 did the drug cause any side effects any hypomobility taking b1 a month no results yet
It's excruciating! I feel like I am being electrocuted from head to toe. I'm in a flare right now. Prayers for all that suffer from this horrible disease.
Sorry for ur suffering. Same here
Sending love! It's hell, one day I hope they can help us!18years I've researched and suffered. I've tried everything. 💕💕💕🙏🙏 keep fighting
Contact doctor Dantini in Florida
I don't know whether this will help you or not, but for decades I suffered from carpal tunnel syndrome in my left wrist to the point i was constantly dropping and breaking things. There was also a spot near my left wrist that constantly tingles with an electric feeling due to nerve damage causes by a needle puncture for surgical anethesia. This went on for years until i started taking Vitamin B6 at 200mg per day. I don't remember how long exactly i took it for but within a few months the carpal tunnel and the needle caused nerve pain went away. I don't think 100mg worked, but the 200mg worked. I did read somewhere that B6 in high doses is not good. So once the symptoms subsided, i backed off to 100mg and i don't take it everyday either.
Another thing you might want to look into and perhaps supplement is lecithin. It makes up the myalin sheath on a nerve cell ( analogous to an electrical wire sheathing or covering that keeps the inside wire /nerve cell well insulated).
I am also sensitive to neuro excitotoxin like flavor enhancers such as MSG, disodium inosinate, disodium guanylate that whenever i ingest them, a day later i start to feel tingling pain again. These flavor enhancers are practically found in majority of processed salty foods from chips to sauces, to soups. Do a google search on "excito toxins" to learn more so you can decide if you still want to include those additives in your diet.
The video recommends these for fibromyalgia:
- Agmatine 1000 - 2000mg
- Thiamine mega dose
- CoQ10
- Magnesium
- Calcium-D-Glucarate
Thank you 👍
You are appreciated
Thank you 🙏🏻
Thank you
Would be nice if it had the daily recommended dosage. Does he have it listed anywhere?
I was diagnosed with Fibromyalgia and neuropathy after a car accident. It was years of constant pain everywhere before an infectious disease doc tested my Vit D level. It was the lowest he’d ever seen in a living patient (3.1). I got a call to come do an immediate cardiac stress test because at that level your muscles are literally ripping apart. Pain improved dramatically after Vit D level got up to normal. Every fibromyalgia patient I’ve told that to whose gont their Vit D level tested has been deficient.
My husband's vit d tested at 0. The Dr said it would take him 2 years to get it up to normal taking 5000iu a day. I guess because he had the gastric bypass years ago. He was scared to take his vit d because of his calcium level getting to high and him having more kidney stones. He had many. And all but 2 had to be removed surgically.
I was deficient as well, but once my levels reached normal and stayed that way consistently for a year, it did not improve pain level or intensity.
Never take vitamin D3 without vitamin K2. K2 pulls the calcium out of the blood stream and pushes it into the bones where it belongs.
@@hollyalbertson1237 I believe that taking vitamin K2 (usually in the form of MK7) will help take care of all that calcium - making sure it goes into the bones and not the blood stream. I take 10 to 20 thousand IUs of MK7 about 5x per week. Am 81 y/o - in other words, still living! 😍
I was too but I'm still getting a flare really bad when I need a surgery it just goes off like a siren!
I was diagnosed with Fibro. 1998 and was close to going on disability. I took a course on allergies reduction. Found that I am highly allergic to wheat.
After no wheat gluten for 2 years I had no symptoms.
This should be looked into as many people in the course had dramatic changes in their health for the better.
I have been tested for that and that is not what’s wrong with me.
@@josieeckwright370 keep looking
Thankyou, this is awesome to know! I have to ask my doc for a gluten allergy test
Going GF has helped me tremendously. I am not positive for celiac because I have a genetic condition called IgA deficiency. So therefore my Celiac test comes back false negative.
Yeah, unfortunately after going on a strict diet, it wasn't what was my problem.
I don't have Fibromyalgia but suffer from Chronic Pain and understand how terrible life feels so i hope this helps them👍
Thank you. ❤
❤
Try carnivore
Suggest you consider Curcumin. It's the active ingredient of Turmeric and si a natural anti-inflammatory. I went on it for Ulcerative Colitis, it worked well but as an additional benefit it fixed my Fibromyalgia too. It is available without prescription.
Please go look up Vugal Nerve
I’ve had fibromyalgia since childhood but only diagnosed by a rheumatologist 8 years ago :) I am now 64 years young.
I also have had Graves’ disease in my 20’s which then became Hashimoto thyroiditis in my forties along with elevated leptin.
My experience with doctors, specialists and functional medicine practitioners has been unhelpful and that’s being polite.
I became my own health and wellness doctor from my own research which has been a slow road but I have made immense progress with improving my pain, mobility and fitness.
Intermittent fasting including longer fasts OMAD
Plants, nuts and healthy seeds
No grains gluten free
No dairy
Low toxin products in body care
Clean eating as much as possible
No processed foods if possible
Organic or throughly washed fresh produce
Exercising everyday, yoga, Pilates, walking, weightlifting, qigong
Hydrotherapy pool
Meditation
Mindfulness
Sauna, steam room and spa pool
Everyday is a new day
I take supplements and am trying higher doses of B1 along with a B complex, B12, vitamin D, Zinc, Glutamine, pea protein, also other supplements and foods that have high nutritional content.
My health has improved significantly over the past year with increased fasting and exercising. I also lost 13kg and am working on loosing another 10kg this year.
Thank you for all your content it’s appreciated that we now have so many good people like you offering sound advice.
Keep trying... keep learning.... the Dr can only prescribe something for you to try. No..... one has to try natural things for yourself. I am 64 also. I have had fibromyalgia my whole life. I know I have even as a child. So many different problems. You are doing it right.... congratulations!!!!!! Life is better only because you did it yourself. I am trying to learn all I can to feel better... for me!!!!!
I would add massage. It helped me a lot!
Congratulations! Try the Co- enzyme B with P-5-P(B6) 100mg and Benfotiamine 300mg, Alpha Lipoic Acid 600mg excellent for neuropathy used in Sweden.
Thanks for sharing. What helps my husband was some of the things you mentioned, change in diet, cut down on sugar. I'm glad he found a doctor who is knowledgable and open-minded on the use of supplements. He prescribed alpha lipoic acid, quercetin, turmeric, PEA. My husband's pain also caused him to have heart palpitation in the morning. Some days the pain was so intense, he couldn't work. So, we did a lot of things besides seeing specialist pain doctors who gave pain medication that helps a little but don't reach his pain area. We went to healing conferences to get people to pray for him, diet change, supplements (trial and error, it is different for everyone, I read a lot of medical studies and tried many things on him, some started out promising like ACV, lemon, lion mane supplements, yet these ended up causing him pain, so I learned every BODY is different. Now, I'm stuck with 20 over supplements that he can't take and we narrowed down to alpha lipoic acid, PEA, quercetin, turmeric that helps him. A new one I'm trying for him is broccoli sprout because it is an Nrf2 inducer. I also tried ASEA redox gel because my friend who had polio (when she was a child) told me it works for her because she still suffer nerve pain. It was part of an MLM product, sounded like scam at first, but hey, when you are sick, you try all kinds of snake oil. I think ASEA gel helps him too. I gave some gel to my sister when her parakeet was dying from a tumor/lump. It has stopped eating or flying, the vet said there's no cure. So we decided to risk it. She applied the gel on the bird, cover its eyes and shine infra red light on the lump for a few minutes. The bird is now flying around. So, I truly believe the ASEA gel helped. Another anecdotal, last week her backyard chicken was dying, the chicken was already 6 years old, I told her not to force feed anymore, just let it go. She decided to rub ASEA gel on the old chicken and shine infra red on it, just like the parakeet. In a week, the chicken recovered! I was shocked. I decided to become part of the MLM :), never thought I would join an MLM. I'm not trying to sell it here. Just sharing. If I sell it here, I would discredit this whole story. I hope it would help someone who suffer nerve pain. Now, my husband has healed so much, we are so thankful. I credit it to all the prayers of my church friends, supplements, ASEA. I hope this will help others too.
Washing regular fruits WON'T REMOVE THE PESTICIDES😤😤💀💀
Im 70yrs old also having pain around my breast & in the diaphragm area...burning,pins & needles,tightness.Im praying thatcJesus heals me & I'll pray for you too.He's our Healer & He loves us.Praise the Lord!🙌😇
Why are you praying for Jesus to choose you for a miracle that most likely won't happen? God seems very fickle with who He chooses for a miracle. That doesn't sound like He is "good." Get help from a doctor for your pain, please!
Jesus please heal your child!!! 🙏🏼🙏🏼🙏🏼
Pins n needless r called Parastheisa
@@AnastaciaInCleveland
All the suffering in the world is caused by mankind. Of which MD's and their accomplices the pharmaceutical industry, are major contributors. Otherwise, RUclips Channels like this would not be necessary.
Amen dear one God bless you and bring everyone who suffers from this condition back to normal living I pray in Jesus name praise the Lord praise God Amen❤❤❤
Finally a REAL PERSON SPEAKING!! Thank you for that. ✌🏻
I had an accident at 17 years which impacted my spine. After a major car accident I had really bad whiplash injury which caused pain for over a year. Then after marriage breakup in 1997 I was diagnosed with fibromyalgia and chronic fatigue after MS was ruled out. Then in 2016 I became paralysed from waist down and was eventually diagnosed with Transverse myelitis which involved same area of spinal cord as previous two traumas. ( myelin sheath was stripped from cord)I believe all were connected. Doctors seem to have little knowledge. Every thing I have learned to help cope with my condition of severe nerve disfunction and pain has been through research. This video is very very helpful to understand how to help me cope . Any pharmaceuticals dampen down or dumb down my brain and energy
I always thought MS was suspected with damage to the myelin s. I only just discovered also that Trigeminal neuralgia also was strongly linked to MS. I had that for 3 months 10 years ago. Not been tested for MS.
The problem with symptoms is that they can belong to other diseases also. My son kept telling his doctor that his legs were always hurting and he felt like his bones hurt. The doctor actually told him your muscles hurt but your bones can't. Well one day he had kidney failure. In the hospital they did thorough blood tests. They came back and said they wanted to do bone biopsy. It confirmed what they suspected with the blood test. He has multiple myeloma. That was his legs hurting and bone pain. But it took a very thorough blood test and bone biopsy to diagnose.
Is he okay now?
Poor Kid , 🍀💜🍀
He has his good days as well as bad. There is really no cure for multiple myeloma.
@@alissagonzales735 What a trial! Bless him and your family!
Did they check his Vitamin D level? All the best with his health.
THANK you, doctor, for acknowledging and supporting the science of NUTRITIONAL DEFICIENCIES in this video!
Considering the mind body connection is critically important in overcoming health issues. For those that doubt its relevance, I completely understand. I spent years dismissing it. After years of suffering I finally entertained the findings of Dr. Sarno and after doing the work (releasing repressed emotions) my pain went from an 10 (barely able to walk) to a ZERO. If it didn’t happen so profoundly I’d still be in the doubting camp. Look, I understand, believing our physical body is so deeply affected by our emotions is hard to accept. But if you can put that aside for long enough and do the steps necessary to release the repressed emotions, you’ll find out just how effective it is. Sarno was a pioneer in this field but there’s a lot of other experts to consider. Find one that resonates with you and reap the benefits.
Agree completely. I read a book about Dr Sarno and was blown away. He has an incredible success rate. I also read a fascinating study where they told people with severe knee pain that they were getting a knee replacement. They put them under anaesthetic, and made an incision, but didn't replace their knee. When the patients woke up, they all reported that the pain was completely gone, despite having the same old knee. The mind is so powerful.
Yeah, right. Still no pain? Did it last?
@@thomasprislacjr.4063 Yes still no pain. Doing the work also helped my digestion and energy levels.
Hi I have fibro. Can u pls share what book it is...
@@thomasprislacjr.4063yes, still no pain. It’s lasted for 11 years so far. I’m just one person. The same has happened to hundreds of thousands. Take some time to look into it…. without prejudice
I had fibromyalgia for years, I was in horrible pain. The muscle of my back would become like a giant cramp for several days. This was usually trigger by an emotional upset. For a reason not related, i decided to start eating only organic food and my pain little by little disappeared. I haven't had a fit in years. I notice that when i eat food from regular supermarkets again for a short while, the fibromyalgia creeps back. I can't explain what's going on but i am convinced there is a relationship with diet and the quality of our food.
The potassium you're eating is helping with your back pain. Low potassium high sodium diet is the cause of back pain especially when the pain is idiopathic.
Food absolutely definitely affects our health
It makes a lot of sense to me why you feel the benefits of organic vs supermarket, it's an obvious but sadly ignored fact that with modern farming the intensive methods have created dead soil (hence the need for artifical fertilsers) lacking in many minerals etc you would expect to find in healthy organic soil, as a consequence even fresh produce from supermarkets will not be as nutrious as fresh organic produce
Average of 2 kilos of artificial chemicals are consumed by eating supermarket foods per year. That's like 2 bags of sugars worth !
That's interesting ? . You clearly witnessed emotional upset disturbing your nervous system, however you turned your attention to food being the problem . That sounds a little like emotional avoidance , a known protection mechanism to avoid intolerable emotions that can cause symptoms when not expressed..
Just as a side note if one is dealing with health issues, chronic pain, fatigue and depression and anxiety look at your situation if you are being psychologically abused and manipulated it will wreak havoc on your health.
Yes, exactly.
Yes, I agree. The stress in my life made pain much more intense
Yes that's it
My ex tormented me every day for 18 years, in and out of court and he used money and intimidation as weapons. I think the stress absolutely brought on fibromyalgia.
I've lived this. Ex-husband was a narcissist who was psychologically abusive. We lived with his grandmother, who had her moments, too. I was walking on eggshells around them. Under his "tender loving care," I developed fibromyalgia. To add insult to injury, he didn't believe that I was suffering from a real medical condition! Once, he got very angry with me for daring to ask him if he could rub a sore spot on my back. So, yes, you can develop fibro from psychological abuse!
Your video saved me! I had been suffering with fibromyalgia since a thyroidectomy in 2008. I have been taking thiamine and agmatine, as you discuss, and also take magnesium lysinate glycinate, for about 3 months. My pain has decreased by 90%!!! Additionally, I have shared this info with two other people with fibromyalgia who have also experienced tremendous relief. I had been on cybalta for years as it was the only thing that sort of helped - I'm now free from this medication. I cannot thank you enough for your videos!
I have been taking L-ARGININE and VIT-B1 for 3 weeks now after watching this video, as well as TENS stimulation of my vagus nerve nerve and my symptoms have greatly reduced. So Thank you EONUTRITION
Interesting do you have fibromyalgia?
Do you go somewhere for the tens stimulation or do it yourself? I have a Pots so anything that stimulated the vagus nerve definitely sounds interesting to me
How are you getting on now?
Some more info would be greatly appreciated.
Thanks💐
Ten stimulation of vagus?
What it Ten stimulation
It is a neurological disorder caused by supressed trauma. After a traumatic event the mind supresses the effects until the person is safe. This supressed shock can last years or even decades. The longer it last, the worse the outcome will be. When the mind finally feels safe, the supressed trauma has caused damage to the nervous system. The damage to nervous system and the injuries from the traumatic event are felt, and any injury occurred during the supressed stage are also felt. Now the person has what they call Central sensitization syndrome. Which is the medical term for Fibromyalgia. A good neurologist who understand this, is a must for anybody who has fibromyalgia.
I agree 100%. The problem is I need a doctor who can also understand and help me. I go to a neurologist, but he is terrible.
@@that_review_guy When my onset happened, I was in a nightmare. Intense migraines, nerve pain everywhere, panic attacks. I seen 2 neurologist and they were useless. I was left in constant pain and migraine for 9 years. I got no treatment because of those terrible neurologist. After 9 years I finally found a good one that treated me for fibromyalgia. He's the one who told me what it is. He said the best method is to address the migraines and headaches and the body will follow.
Keep trying to find a good neurologist, it's a must for people with fibromyalgia.
Thank you!! I agree with the trauma component 100%.
This resonates with me. I had cancer 5 years ago and went through chemo and radiation. It was a really traumatic experience and I suffered years of pain in recovery and a lot of grief.
I was diagnosed with fibromyalgia 2 years after the treatment ended.
I finally started to feel like I was getting better this year but had a bump on the head a couple of weeks ago (mild concussion) and all hell has broken loose. The burning and nerve pain is back and I really feel that the knock has triggered the original trauma in some weird way.
What are the best strategies to heal from this
Right now, as I write this, I’m dealing with a flare up. Not pain but restless arms and hands. Uncontrollable twitching and tremors in my hands, a surging feeling throughout my face, head, tongue, arms & hands. I am dealing with sleep deprivation by way of sleep apnea. I have maybe gotten a full 8 hours of sleep in almost 4 days time. I’m so exhausted I don’t know what to do. I’d actually rather have the pain instead. I will keep all of you suffering with this horrible diagnosis in my prayers. ❤
Praying for you also! This is a horrible disease! Sending a soft hug! I’m in a flare also and have great empathy for people who are suffering from fibro
@ thank you, that means so much. I will pray for you also 🙏🏻❤️
I was diagnosed 35 yrs. ago with fibro around age 35. I am now 70 with little quality of life. I fought various Drs. back in SC and now NM. I do have issues with heart palpitations and diagnosed 8+ yrs ago idiopathic neuropathy because Drs. couldn't said I wasn't diabetic so it had to be something else. My condition has gotten worse to point where Drs. just think I am a Dr. shopper or hunting for opioid. Yes, the pain is so overwhelming that people's attitudes today are nonchalant to suffers. I could not take normal prescriptions for neuropathy, so I have gotten worse. It is finally good for not being a mental weakling.
I don't like when the doctors think that u just want opiods....I just want the pain to go away & have quality of life!!!! but they choose to leave us in severe pain!!
opiods won't be addictive if u take them the way they are prescribed!!!
Bless your heart.
Just wanted to say, " I care."
I was diagnosed by a free thinking, compassionate doctor who didnt care what other doctors thought of him for taking FMS seriously.
Magnesium was a big help to me, but I've lived with the pain for 50 years. It is a very cruel medical problem. I too cannot take prescription pain relievers.
I have been blessed with a very caring husband for 46 years who "gets" me and FMS. I am thankful to Jesus, every, day.
God bless and heal you🙏✝️
My story is exactly the same !
Please research the carnivore diet for autoimmune. Whatever fibro is classified as, I can tell you my quality of life has vastly improved and my pain levels are nearly zero most days. It has taken 5 months to get to this point. But I saw improvements within the 1st 30 days. I caved and ate a piece of cake last weekend, and my pain came back. My energy was gone, and every joint in my body hurt like they did before. Diet has so much to do with health. Prior to carnivore, I was paleo and found some relief, but not like I have on the carnivore diet. Be open to the fact that we have not always been given the truth regarding meat, cholesterol, and heart health.
I had a chiropractor for 30 years who treated me. I walked out of his office WHOLE every time. I’ve never found another chiropractor who was as thorough as he was. I haven’t found 1 who could treat my pain but he always did. Regular doctors just wanted to prescribe nerve or pain killers. They said that all my X-rays looked normal. The chiropractor says that they only look for a break or compressed vertebra. So when a rib is out, they don’t notice that. My chiropractor passed away and I’m barely coping with the pain im in. I’m just grateful I had him to treat me and give me a quality of life for th years I did.
Look firva chiropractor with integrative training. ❤😂
I had a similarly transformative experience with a chiropractor, he clearly and comprehensively taught me why I hurt after two decades of other doctors just pushing drugs to mask it. He took the time to show me the source, I made adjustments, and healed. It was life-altering and also mind-opening.
Agreed, any Good doctor is hard to replace. I've a chiropractor who has kept me out of surgery for decades. I've both a slipped and a bulging disc. he's about ready to retire and I've not found anyone else who can restabilize my back. While I've learned how to reset some minor displacements on my own it is hard to get a vertebra in the midback into place.
@@happygardener28 Say this 3x fast: "Mares eat oats and Goats eat oats but little Lambs eat Ivy."
@@FutureSuperstars5761 Or spell Mississippi and Cincinnati three times in one breath
3:28 Hint. 3 out of 4 inhibitors are hormones. On a rheumatology slide. FM people really need a solid endocrinology work up. (as well as rheum) Approx 25% are GH insufficient. Treatable. Cortisol/high/low adrenal problems can also cause FM symptoms. I'm glad you ended by saying it's good to get to the root cause. (No one gets their substance P tested--via spinal tap--which makes a lot of FM chatter hogwash.)
Problem still is many of us tested have results that show we should be in excellant healh. Its good news and bad.
I’ve struggled with Fibro for more than 20 years. I’ll share with readers what has helped me. Acupuncture!!! I went to a Chinese Dr in my city who had a reputation for helping many patients. Everyone’s different but, for me, they did a lot of pints up and down the liver and gallbladder channels (which are associated with conditions of the nervous system). They also did Moxa on same channels.
I also take a high quality (methyl) B-100, and B-12. I also take Magnesium Glycinate. And I use Magnesium Oil on the skin, in some areas that typically hurt.
All of these measures combined make a huge difference in the condition for me.
There is also a psycho-spiritual element to it (for me), meaning sometimes certain stressors can trigger the condition, such as handling matters of the heart.
I am very interested in acupuncture for fibromyalgia. It makes so much sense to me, especially because the tender points seem to be on the meridians. I am going to investigate this further! Thank you for sharing.
What dose b1? Did you try the agmatine.
I'm glad it helped you. I have nothing against acupuncture, but I've had FM for 63 years, and it did nothing to help me. I wish it had.😢
I tried 11 sessions on acupuncture and see no difference. I wonder what my therapist did wrong. After how many sessions you feel improvement. Thank you
@@ZumbaMoe I noticed a difference around 10 or 11 sessions, yes. That is frustrating that it doesn't seem to be helpful for you. The Magnesium Oil on my skin (large muscle groups) is also very helpful for the pain. I use the Ancient Minerals brand because it has a good dose of Mg, versus other brands. I guess Different things work for different people.
I’m 41 and have fibromyalgia, avascular necrosis of the knees and hips, as well as degenerative disc disease. In the US, fibro is still considered a fake disease. I also have kidney issues and a history of acute kidney injuries. Last time I went to the ER, thinking I was having another, they told me everything was fine, even tho my CT scan was abnormal and I had abnormal blood work and urine. Before they did the tests, they seemed concerned but everything seemed to change when I mentioned I had fibromyalgia and took pain meds regularly.
@@heathergreenakers yup,!! With fibro you need to do your own research. I finally got a Dr. Who gave me a diagnosis. Forty
Didn't they give u a shot for the pain? I e dr could just be a jerk, try another time, or hospital? I had a flare and I thought I was dying
Unfortunately, same here 😭💔
Great post. As a person with Fibromyalgia I can say with conviction that it is not neurological in total. Neurological reaction is a symptom which developed as a result. The causes of fibromyalgia are extremely varied. I personally was hit by an array of events before being diagnosed. I had Bilharzia, got Coxsackievirus and Epstein Barr after it while going through a divorce. So the shock to my nervous and immune system was severe. The physical effects are extensive, varied and complicated. Not many people talk about the malfunctioning adrenals either. MostFibromyalgia sufferers have a severe Magnesium and Iron shortage too. Off course there are other shortages too. There's a lot of reports about the benefits Benfotiamine now. So far Dr Jose Montoya from Stanford was on the front line of research, but unfortunately he was fired due to misconduct allegations.
My mother had poliomyelitis as a child and most of us also took our polio "sugar" cube as a child. Her nerve centers died in her lower body as a small child and she was paralyzed waist down however within a week began coming back (however science says the nerve centers are inferior)...and she was diagnosed w fibro as an elderly adult a few years after I was post mono/ebv. She also has celiac. She cannot maintain iron in her blood but had anemia in childhood too. My gut says this is all connected. Glad you persist in your study and care for your clients and the field at large. Gratitude.
Not sure about the situation - but I urge you to read up on MORLEY ROBBINS (utubes etc). He knows *all* about the Iron and Copper story.
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Very odd...my mom, too. She was 2 or 3 years old and couldn't walk until after a lot of physical therapy. Her lower spine sort of "fused" itself or something, she could never sit cross-legged. She got rheumatoid arthritis and lupus later in life. I got trigeminal neuralgia when I was about 27, I think. It came after a long period of being ridiculously tired after my 2nd baby, but no Dr could ever find anything wrong. At perimenopause I began developing fibromyalgia, that is now disabling. Just got my TTFD today to start. Fingers crossed.
@@creatuitiveguru how are you doing after taking TTFD
I am 44 years old and have been fighting fibro since in my 20’s. The change happened after I was required to take 2 doses of the Hep B vaccine in nursing school. I struggled through a 20 year career as an RN, but just couldn’t manage any longer. I am absolutely convinced that my fibro was auto-immune related. I am also convinced that all the antidepressants and gabapentin that got prescribed in those 20 years have worsened my symptoms, not helped. Once I was off all those meds, my fibro got better. I still have exacerbations after physical activity or stressful events, but at least it’s not continuous wide-open pain.
(PSA- do not stop antidepressants or gabapentin cold turkey! The withdrawal symptoms can be extremely harmful!)
In the years since my unofficial retirement, and especially after witnessing the political takeover of healthcare and the silencing of so many in the industry in 2020, I am ashamed that political activists and the mainstream media has ruined any chance of REAL healthcare in this country. If there’s to be any healing of my body, I’m gonna have to do it myself!
@@americanrn125 when I first developed FM i wasn't on any medication, could have been caused or triggered by DV, but I'm not positive about it.
Benfotiamine - Benfotiamine is a lipid-soluble derivative of thiamine. The increased lipid solubility of benfotiamine allows it to penetrate nerve cells more easily. After oral intake, benfotiamine shows increased bioavailability compared with an equivalent dose of water-soluble thiamine.
Fibromyagia = Idiopathic intercranial hypertension = chronic fatigue syndrome = multiple chemical sensitivity - they are all manifestations of exactly the same thing! Central nervous system disfunction often caused by Toxins / virusrs etc trapped in the brain / central nervous system. Better functioning glymphatics can help these conditions tremendously. Great video. 😊👍❤️
Look up fluoroquinolone toxicity also.
They are all linked, mine started with CFS but ended up becoming MCS that I still have to this day
What helps the most with the glymphatic drainage besides sleep ?
Your comment made more sense than 5 doctors I’ve seen! Any resources u can share?
@Shan I have that. The first month's were hell of Earth.
I studied Agmatine in Longevity and Nootropics research. 8:34 and on to the summary 1000 to 2000 mg of Agmatine paired with Thiamine mega dose, CoQ10, Magnesium, and Calcium-D-Glucarate. etc. 7:34 Things it can help treat
I have been diagnosed with both Fibro and ME. When referred to the weight loss clinic, on speaking to the nutritionist for diet advice for both these conditions and weight loss, she didn't know of the connection between diet and the conditions. My response was that I obviously knew more than her so she was no use to me. The problem is that the NHS aren't given funding to investigate the option of diet and some conditions. They are happy to prescribe me multiple prescriptions, but not find healthier, and free lifestyle options. I guess I just answered this myself!
Tell me about it! Grrrrrr
@ Lyn Jermey unfortunately this is a global problem nutritionists, dieticians, GP’s and also specialists alike are not trained to understand specific nutritional needs related to fibromyalgia nor any health conditions. This lack of education and knowledge is due to medical training and at best a doctor will get very little education on nutrition. Unless they have a particular interest in nutritional medicine there’s not much point in seeking advice from any of them.
I’ve spent large sums of money seeing all of the above without one giving me sound recommendations.
My research was done on listening to science based functional medicine, Andrew Huberman and mark Hyman and any others that make sound sense.
For me my diet and lifestyle changed for the better when I started IF, stopped eating meat, fish, dairy and gluten. I think if your body is suffering removing toxins and foods that cause inflammation is the way to improve your health. Fasting allows the mitochondria to recover and regenerate so this has allowed my body to heal itself.
This all sounds drastic but I did changes over five years and have found it to be sustainable and preferable to being in constant pain and constant physical stress.
The saying we are what we eat and looking at holistic and ancient cultures how they treat the mind and body as a whole rather than western medicine prescribing drugs and giving a referral to a specialist that does nothing for you that is proactive is demoralising.
The problem is that a doctor will use a blood test as a measure to say whether or not we are unwell. Since many health problems fibromyalgia being one of them do not show any reading on a blood test it’s often undiagnosed and misunderstood. However even if it is diagnosed toxic drugs are prescribed rather than a helpful holistic approach.
I hope you continue to research and be your own best advocate. It is also helpful to focus on mind, body health not just nutrition for the body the mind and body are interconnected.
:)
same issues as you, Doctors are quite thick in the UK, we have to help ourselves.
Same i NZ, they have no clue! Even admitted it. I have ME 17 years, quite mild, but 3 years ago I got ‘chronic pain’. I tried the Mind Body thing watching various trainers on RUclips, Dan Buglio for one. But in a year no better. So I think it’s another ME symptoms.
Uneducated
B1 and limit candida overgrowth with limited sugar intake...These two things brought me back to life.
Elliot I appreciate you mentioning B12 deficiency. I have seen people diagnosed with Fibro having amazing results on B12 injections; repairing the symptoms of demyelination (such as neuropathy, myalgia, numbness, pins and needles, etc) caused by a lack of B12.
I have fibromyalgia and taking DIY methylcobalamin (a form of B12) powder capsules, is that okay? Or does it have to be a B12 injection to be effective?
Hi Elliot, just found all your info about B1. Thanks for sharing this with the world.
I'm interested to know where does B12 deficiency fit with all of the symptoms linked to B1 treatment. I have many of the symptoms related to B1 deficiency that you mention, however, I was previously informed that these symptoms related to B12 deficiency.
Ive been injecting B12 EOD for 13 weeks and taking 5mg folic acid most days. Whilst this seems to have helped somewhat, in the last 2-3 weeks I have gotten really bad neuropathy. It got better for a bit but now it's worse. I was told this is wake up (paradoxical) symptoms but now I'm wondering if it's B1 deficiency.
Could taking high dose B12 and B9 increase B1 deficiency/ symptoms due to creating an increased need for B1?
@@soniap2891 I used to self inject B12. It was the kind that started with a C. Don't do that. I didn't know. That's one of the worse forms. It's toxic. It's what's most commonly prescribed too. It may have gotten my levels up with my blood work, but that's the only thing I noticed. No improvement whatsoever. Including with my neuropathy. I personally would recommend at the very least, an activated B complex- methyl form, and elemental magnesium before I would do the injections. I'm also about to order B1 supplements, but haven't taken them yet. Oh, and I eat non-fortified nutritional yeast regularly. I'm hoping the B1 is going to be what shows me the most improvement. I'm sick and tired of being sick and tired. But plz avoid the B12 shots that are in the C word form. I can't remember how to spell it. But it's the most commonly used form. I've learned through my own mistakes and from those who've shared theirs, and I try to pass it on. You can raise your levels with a methyl B12 form, pretty quickly. Just don't forget to take it with a cofactor and a B complex.
@@jake.james.89 B12 injections didn't help my neuropathy or any other issue. I have chronic fatigue, pain, fibromyalgia, and numerous moderately severe cervical spine issues- neurosurgeon wants to do surgery. You're better off taking an over the counter methyl B12 form with activated B complex. And elemental magnesium. I'm also about to order B1 supplements. I'm thinking the B1 may be the problem or a huge culprit. But you still need the other B's to keep from developing a deficiency in them. Magnesium as your cofactor and to assist the B1 at the intercellular level. Some people use and recommend more than that, but that's at least the basics for starting. Elliot has other videos on thiamine. Including one o watched yesterday for fibromyalgia. Just go to his channel and search. I figure I'll start out kinda slow cause I don't think I can handle feeling much worse, which would be my luck lol. I'd rather it take longer to achieve results than to be severely sick but in a shorter time.
@@ThisIsNotMyHome
co factor ??
I am so glad I found this video. I am tired of being told that Fibro is just mental- in the US all that has been told to me that I can do is eat low carb, gluten and dairy free, and I do, but there is more to this than just mental health and diet and finally people are getting serious about it
This man looking better and better every video,quite reasonable cause to at least to listen to him.
He looks like Alain Delon.
You've got a gift for teaching and such a God sent caring soul!! Ages of wisdom beyond the average practitioner🙏🙏
A doctor/surgeon who treated my hubby for neck pain informed me at one of his appointments before surgery that caffeine was the worst beverage a person with fibromyalgia could ingest. I've been debilitated by fibro since my mid-twenties to the point of disability from my career. It has been excruciating pain at times (10/10 pain - no kiddin'). Quitting drinking coffee helped decrease the intensity of the pain by at least 75%. It's unbelievable to me, but after listening carefully to this vid, I understand now how indeed quiting caffeine altogether ameliorates the intensity of the pain coursing through my spine to my upper back and knees & elbows where it hurts the most. Naturally, it wasn't an easy "joy" to give up my morning coffee, but I feel less pain, so it's a win for me. 🙂
That's because caffeine stimulates the nervous system and fibromyalgia is thought to be caused by overactive nerves. Glad you are feeling better 🕊
Caffeine is a anti inflammation so humm
@@Hope.Israel.prophetic 💐🙏🏽 Thanks, Hope. I'm glad to be feeling much better.
I had the opposite experience. I quit coffee at one point having read about all the dangers of it, headaches, the spiral of being 'addicted' etc. So I quit as an experiment. Over time, months, I never noticed any improvements in my fatigue or headaches. At that point I was simply doing caffeine free as a point of habit. After 3 years, one day right out of the blue, I thought to myself how exhausted I was, and realized I was still drinking no caffeine even though I didn't have a reason for that. I went back to drinking my morning coffee, and over the years, I had so many bad days filled with pain, that coffee is the only thing that gave me any bit of energy or drive at all. I can't imagine what I would have been like without it. Also Excedrin Migraine was a friend of mine. I have since found a chiropractor that has helped me, started taking testosterone replacement (found out I have none) and started eating less gluten foods, I feel much better than I did. Also I have came to the realization that my marriage is crap and I can't fix it, so I just find other things to do avoid him. SO much less stress.
What about decaf?
OMG. I have SUFFERED with idiopathic small fiber neuropathy for over 15 years. I’ve tried to keep up on research, but I have never ever heard of Agmatine! I’m truly stunned I haven’t come across this before now. Thank you thank you thank you for at least the possibility of some relief.
I’ve just now read that agmatine “agmatine inhibits opioid dependence and relapse in several animal species”. So that may also help me since I’ve been on Nucynta for many years. My neurologist seems very uninterested in small fiber neuropathy so she’s no help. She’s just a cookie cutter Dr. But my GP is more interested so I know she’ll read what I send her and give guidance re all the many other supplements I take to make sure I’m not taking things that are fighting each other before I start trying Agmatine.
OK… I got a little chatty. Just wanted to give you a thumbs up and say thank you!
I've been sick for most of my life, over 40 years. It's just gotten worse and worse. I've been trying for several years, since I found out about small fiber neuropathy and its link to fibromyalgia, to get tested for it. This is proving impossible so far, but I haven't given up because my life story as it pertains to my health was spot on being revealed by the leader in the link between small fiber polyneuropathy and (often undiagnosed, as was in my case) juvenile fibromyalgia. I'm convinced this is where my health issues stem from.
This video is one of the best have seen before about fibromyalgia. Thanks a lot from Fort Lauderdale Florida USA.
Thank you for stressing how important it is to find the root cause of a patient's Fibromyalgia. Unfortunately, patients often stop seeking the root cause once their doctor shrugs and tells them they can't find anything wrong so it has to just be Fibromyalgia. After several years of exhaustive tests wielding negative results, I kept searching and finally came across a diagnostic blood test to confirm it. Okay, great. Then I had a 5 month battle with severe IBS that oddly led me to an Upper Cervical Care Chiropractor who showed me a cone scan of my very crooked neck. 2 days after my first adjustment the IBS disappeared - so that's when I personally started to think of the connection between the nervous system and my Fibromyalgia (instead of autoimmune). This then led me to my current spine specialist and the discovery of L2-L3 Spondylolisthesis and degenerated disc! I've started a course of physical therapy including using a lumbar traction machine which gives me great relief but only lasts for a couple of days. I'm therefore keen on trying these nutrients you discuss as well for long-term pain relief.
Hi.similar, decades of agony ,sufferring pain.tried everything including lots of the supplements. No relief.
Did you go to Top Chiropractic? I am considering going to see an Upper Cervical Chiro and interested to hear your experience
Try some natural anti-herpetic therapy (no coffee, limited total caffeine, lysine on empty stomach 1 hour before meals, no high arginine/citrulline foods, maybe lower total protein intake for some time, inosine, elderberry, vitamin c, cordyceps, etc) and see if it lessens your tension and fibro.
My teacher cures the pain no one else seems to, Dr Klinghardt. He finds reliably there is an underlying infection that even the brain may not see. By finding and treating that (retroviruses, Lyme co- infections, etc) the pain resolves quickly. Our Seattle area finest NDs, MDs send their incurable to Sophia Clinic. He has students around the world, but takes some sleuthing. Best of luck.
That's incredible to hear, truly. I have a horrible posture (especially in the neck and thoracic spine) and also burdened by a lot of digestive issues. I'm currently fixing my posture, and I hope it will alleviate some of my digestive problems.
I am convinced that fibromyalgia is a neurological disorder. I have fibromyalgia and what the doctor calls a smallfiber neurophaty. I know how it feels and how it behaves. I am sure that those two diagnoses are strongly connected. I wish i knew how to make it go away. Ann
Avoid monosodium glutamate. In the US, Cambells soup refuses to label it that way because it costs them sales. It causes migraines and chronic pain. It can also go by the names "beet root extract" or "yeast extract". It used to be in Chinese food in restaurants lately I find it more often in Japanese restaurants.
Just an FYI, as I was reviewing this video to look into Agmatine a bit further. On
11/11/24 I got a notification that the website was unavailable for the protocol link. The EOnutrition Thiamine protocol link worked, but not some others.
I have fibro, SFN, CRPS2, & more. Probably from the root cause of hypermobile Ehlers-Danlos & injuries from that. I started studying plant medicine/herbalism and holistic & functional nutrition in the past few years as most Rxs have done my body great harm. (I was greatly misdiagnosed until I was 45. Got my hEDS(3) Dx in 2020.) I hope to soon start my orthomolecular medicine course to further my knowledge & support my bendy dizzy body the best way I can.
Thank you so much for passing along your knowledge, as I am still learning & adjusting my daily protocols & making lifestyle changes when necessary.
I had a skin biopsy that was positive positive and then another that was negative. But all the symptoms that you describe is what I’m suffering with. Somebody finally put me a gabapentin after 30 years of being in pain. What a relief.
@shamtibbi8250 it puts the pain in the background, but I have to tell you the muscle spasms overall improved. I tried several muscle relaxers, no improvement. The other thing I found medicine marijuana to be helpful for the spasms. I’ve never smoked it nor I used it in the past, but I had to resort to doing so because it was affecting my life so much. It’s legal in the state that I live in. I use the edibles
Hi Elliot. A massive thiamine fan here and bought some Agmatine following this video but then tried something that seems to be making the biggest difference and I believe may be at the root of these problems. I have chronic pain and neuropathies and POTS and hEDS. I was at a and e this weekend pseudo seizures due to cerebral blood flow problems and dysregulated heart rate and blood pressure and dehydration despite oral rehydration of 2L. Realising a probable problem with extracellular ATP (after much research) I ended up with magnesium. I have been supplementing quite a lot in bioavailabile forms, 1200mg as taurate, glycinate and Threonate daily or so and so didn’t believe I could have a deficiency. Taking your ttfd at 100mg / day also. Reading up on it though and having gastrointestinal problems from childhood it came to light magnesium really needs to be transdermal. I was semi regularly using magnesium chloride flakes in the bath as I was aware of this but not often.
A serum magnesium test from June 2020 was mid range normal but apparently this is not an accurate representation of cellular magnesium. I also knew I had some sort of cellular hypoxia and had symptoms of CFS that thiamine helped but was still getting worse.
So I started to use a magnesium chloride oil as often as possible and in 36 hours my heart rate and blood pressure are so much better. Standing it was 130 sometimes up to 170 and now it’s down to 105. Lying down it was 85-100 now it’s 65-79. My fatigue is almost non existent and I’ve stopped peeing all the time.
Serum mineral levels I believe are inaccurate at a cellular level as the body will fight to keep those normal (even though mine wasn’t even checked at a and e). I believe I probably had a cellular potassium deficiency also. Testing red blood cells is more accurate and biolabs in the U.K. do a red blood cell magnesium test. For sick people I don’t believe oral magnesium supplementation is enough and in chronic illness I don’t believe serum levels are accurate.
I believe that lifelong thiamine deficiency may be due to life long magnesium deficiency inherited from my mother as she had had pre eclampsia when she was pregnant with me and has Had high blood pressure ever since. I developed adhd at puberty when more magnesium is required, depression and anxiety, have had joint pain since I was 8 yo. Massive issues with acetylcholine slow gastric emptying and irregular heart, blood pressure and blood glucose…. Fatigue. Serious cognitive issues - It all seems related.
I would advise that cellular magnesium be tested and tbh even if that were normal if there were symptoms I would try transdermal magnesium in the chloride form daily which seems to have changed my life in 36 hours (but i was bedbound so just being able to get around seems like a miracle!) I just wonder if this is a piece of the puzzle that we may be missing as it seems to make sense given that it is required as a cofactor for thiamine and Many other processes. Extremely high supplementation transdermally may be required to correct deficiencies at a cellular level that are under the radar? For me it seems it may be true.
Wow just start using it in my bath will see. I am taking mag taurate, Have you try it ? Did not see difference with bisglycinate and citrate give diarrhea. Next is mag taurate, orotate or threonate, which one should I try ? I also receive my TTFD today.
You should do a video explaining all this, amazing.
I have chronic fatigue, fibromyalgia, and several cervical spine issues (neurosurgeon wants to do surgery but I'm holding off). I definitely have nerve issues. Exercise intolerance. Also heat and cold intolerance. Numerous other conditions. Oh, and several deficiencies. I take elemental magnesium and will switch up the kinds I take from time to time. I've taken only the higher quality without fillers. I just haven't noticed much difference while I've been taking it for several months now. Years ago, I had tried magnesium spray topically, and didn't notice much. Maybe I should try it again along with my supplements. I've spent so much money over the years without any noticeable relief. So now I'm about to start taking the thiamine. Along with my activated B complex (methyl), bioavailable elemental magnesium, vitamin D - K2, and non-fortified nutritional yeast that I'm already taking (without any improvement lol). Oh, and now I ran across another nutrient with this video.. HUGE SIGH. I just want something to help. Being disabled, I can't afford anything else. I'm also incorporating neuroplasticity techniques that help to rewire the brain and deal with brain body connection that is often overlooked but could be the root cause for many, or at the very least, a strong contributing factor. I'm still learning as I'm having to teach myself and can't afford to hire someone. But I think this is extremely crucial for all of us who have chronic conditions. Regardless of what the particular issue is. Just leaving it here in case it helps someone. Thanks for the magnesium transdermal recommendation as maybe it'll enhance what I'm taking or amp up the effects 🤞
@@karine8738 yes, I read the citrate has a harsher structure to it and can scratch up the intestinal wall. I avoid it. I also avoid oxide which is the cheapest form, least absorbed, and causes stomach distress. It's the most common form used in laxatives. Both should be avoided imo. I took a combo before of the taurate and glycinate. I honestly didn't notice anything. But perhaps on it's own, it would be. I think taurate is often used by athletes with recovery if I remember correctly. Muscles and energy/fatigue. The threonate is known for crossing blood barrier (although I've found some doctors who believe all bioavailable forms do to one degree or another- which is contradictory I know) and improving cognitive function along with healthy sleep. The orotate is known for supporting heart health, like blood pressure and cardiac function.
Excellent observations about magnesium. Indeed, relatively high doses 800-1200 mg may have tremendous effects on neurological conditions including pain, so the question is why does it happen. Your idea about cellular affinity to magnesium may be a thing.
Great video. Yes, that makes sense on the sympathetic piece. I have removed abusive, mentally disturbed or non sober etc type of people from my life but when they somehow get to me, my full body can go into a complete flare up - it’s 😢 and very real and no mental health meds help.
I started getting symptoms of fibromyalgia last year. It was like a blanket of pain on my entire back that would come and go, along with many other symptoms. I found that sugar was the biggest trigger for me. I went carnivore, then slowly added just a few foods back, and I felt so much better. I’m hoping this solves mine.
OMGee. The English and Canadians have always been the first with the best research on Fibromyalgia, CFIDs etc. I am 72 and have both. Been managing with many modalities and coping with the hope after 50 years of it I will eventually die a healthier, more functional as time goes on. I really should just write a book. This is critical new info that brings a new beginning with a clean slate to use this new comprehensive info and management strategy. Every few years I learn new research results, this now the most promising. How can I thank you for sharing this work. I just want to cry from happiness to give these Supplimental Modality a new start. I am so grateful.
This truly blew my mind. I'm sensitive to ALL foods except meat, had chronic b12 deficiency and a huge emotional trauma and I've said many time without really believing it, that I grew a new nervous system, but you just showed that I actually did.... incredible. Much affection for your work :)
no that’s not at all what he did but okay
@@allegorx58 Full story, I was vegetarian for 4 years, pinched a nerve on my elbow which started to flare up, spread to my shoulder > neck > other arm > down the spine > whole body. I was paralyzed from the neck down on two occasions for 3 days. Lost over 50 kg in two months. Eating red meat was the turning point, undercooked. After that came my first allergy, then the next, until I couldn't eat more than a minuscule portion of a meal. During the illness (and tens of thousands of USD into multiple MRI's and doctors) I nearly lost my hearing, I just couldn't hear anything, even if the person was shouting next to me, it was really difficult. Carnivore actually came through, after an year I could move normally again, not limp over like a cripple, gradually now I can eat everything in moderation, even getting a bit fat this winter without any issues, because I move a lot. But sensitivity never went away, it just doesn't trigger severe pain at all, like before :)
Do snaps on your pants cause your skin to become inflamed? If so, you have a type 4 nickel sensitivity. Seeds are highest followed by plants in general. It's the most common food sensitivity, no one knows about.
@@ParallaxView111 I'll search for such a test in my area, i've never wore torn pants, maybe I'm just old school, but the uncovered parts of my skin used to inflame big, like they've been burned, bright red and swollen (hands, ears, nose, cheeks). It comes back in a low level only after a prolonged periods of artificial carbs/sweets. I feel insolent to ask more questions on this here but, do you know what DNA test I can do to figure out the foods my body/blood can't absorb well?
@@colosys they don't have a DNA test for it. MELISA org has a blood test for it, but what an immunologist does is put a patch test on your skin, then they leave it on for three days.
There's a bunch of other stuff on the patch test. You would have to ask an immunologist's office if they do patch tests for things like nickel, gold, and cobalt. I was sensitive to all these metals, but not formaldehyde 🙄. You don't have to worry about gold or cobalt in your food though. Nickel is really high in seeds, and is present at medium levels in most vegetation.
If you can't wear surgical steel earrings, it's probably the nickel in surgical steel. This also means you would most likely have a reaction to any sort of surgical implant.
Very interesting theory. My journey has been one with MS. I was accused of all of these kind of pain syndromes to autoimmune disease. Maybe there is more than one thing going on. It took google to the doctor for nearly 30 years before they found all the lesions. Had they listened to me….I might have gotten help a lot sooner. I’m convinced that we’re still in the dark. I’m bitter. Lost my life, spent at least a million, and became disabled at 33.
I have events in the spine where I’m feeling awful in general, my back thoracic and down ramps up in pain and broken glass is the only description.
Prayers for you PreWar.. 🙏🙏💗🙏🙏
You sound alot like me.
I feel for you 💔
@@PenelopePitstop888 thanks Penelope. That’s a lovely name and what strange, strange world where we haven’t thought or invented our way through it. These left turns in life are so confusingly difficult to navigate. Very interesting theory….
Have you tried the carnivore diet yet?
If you have root canals read the book Root Canal Coverup by George Menig
I find this video to be very helpful. My health journey is rather new. Doctors seem to be reluctant to committing a diagnosis if CTscans, MRIs, and the many other tests given do not show a definitive reason for chronic pain through your body, tingling, dizziness, headaches, nausea, dry cough, etc… From my research, I am destined to figure out my own reasons for my health issues. We all have our own journeys, and I do feel our healthcare system is failing many people due to doctors not being more open minded and listening to their patients. I thank you for this video, as I will be using it to discuss my own issues with chronic pain. All I know is this, you don’t treat chronic pain with more potent drugs that play havoc with a person’s body. Good luck to everyone who has chronic pain in figuring out what is best for them! 🤛🏼🙏👏🏼
I've had fibro for over 50 years, there is not much I haven't tried but I do find fasting the most effective tool, on day 3 all my symptoms melt away. I will try high doses of B1 as that is a new idea to me. Thank you for all your work. UPDATE: I took 800mg of B1 five hours ago, I usually take 100mg daily. My back spasms have gone😲UPDATE I can' believe it's been 2 months! I have now tried all 4 forms of B1, hardest to tolerate was TTFD, daily migraines for 7 days, very tearful, low mood. I found exactly as Elliot says - the need for Potassium and Magnesium rocketed, without those my symptoms actually increased. I am stabilising now. Mornings I take 300 mg B1, 150 mg TTFD and a B.complex with Magnesium with 1/2 tspn Potassium Citrate in my coffee (makes it slip down like oiled silk!) Early/mid afternoon another 200 mg B1 and 200 mg Benfotiamine. I use Electrolyte powders 4 times daily too. I consume a desert spoonful of Nutritional Yeast most days and have ordered B12 tablets to add. The dreaded back spasms have not returned, nor the tinging/stabbing oral sensations. I have more energy, not huge amounts but I'm better able to function than with full CFS. I am also using a good quality probiotic powder as I have high antibiotic use history from treating Lyme. This definitely works, YIPPEE, AT LONG, LONG LAST!! My GP said I was the worst case of Fibro she'd ever seen, told me there was no hope, only pills & coping skills, to which I said NO! That was 8 years ago, I made up my mind then to fight it....To anybody who is bed bound, please do try this, go slowly, I did too much too soon! ELLIOT....THANK YOU.
Please give an update when you can. 💐
I've had Fibro for 37 years and have taken 600-1,200 mgs. daily of Benfotiamine (lipidized B1) for many years. It has not helped my pain, but I will try raising it to1,800 and see what happens.
I don't know if I have fibro, but fasting works miracles.
I feel so much better!
Now I wonder if I also have some sort of fibro...
@@meagiesmuse2334 How did that go? Have you tried longvida tumeric? And omega 3 and vitamin D with K2/MK7 and NAC?
@@theancientsancients1769 - It has not made any difference so far, but it's only been one week, and this sort of thing needs a 2 month trial. I get nothing from tumeric, and have tried 5 different brands over the past couple of years. I take omega 3, D3, the MK7 type of K2 and many more every day for years. I've taken NAC twice daily for over a decade, and take many more supplements. Imo, if the sleep disorder (the alpha-delta sleep intrusion) in FM is not resolved, nothing improves much. My sleep has gotten worse due to the health problems FM causes long term, so I wake up every 2 hrs.
Excellent. I have had fibromyalgia for 35 years and my husband developed CRPS 30 years ago after his foot got crushed.
I used to suffer from severe pain for years. One day in a pharmacy, I met a couple of Angels unaware that suggested I try cod liver oil. They suggested the Norwegian version, but because of the cost I got generic brand. Within two weeks, most of my body aches and pains began to diminish. I take one capsule in the afternoon.
This is the beast explanation I’ve ever found for FM. Thank you so much.🙏
Apparently I had fibromyalgia for several years. I started my keto eating regime so I had a reason to start taking VitD3 and K2 along with supporting amounts of Magnesium, potassium, selenium, zinc and a few others. I'm not sure which one it was or if a combo of along with the diet itself, but the pain all went away. Gone for good along with migraines, joint aches, calcium in the blood which caused high BP, and other similar conditions. Doesn't need medication from the doctor that will kill you in the end. Just cut out the carbs and the sugar, take some vitamins and a few minerals, get over it and get on with living life!
Can you please tell me the dosages of everything you take?
Clissa T good for you keep up the work
@@jules3975 Dosages are written on all packs. And in anycase you should visit your alternative health care person to be sure they are suitable for you. Some things are specific to individuals.
@@jules3975Idk why people gatekeep vitamins. Lol. Anyway, try taking Source of Life Liquid Gold Multivitamin as a start. NAC is a good supplement. Liquid Vitamin D by Carlson. Add it into your liquid multivitamin. Then take a multi mineral. Preferably one with Fulvic Acid. Potassium should be the Life Enhancement brand. Calcium Magnesium from Country Life. Then top off all your Amino Acids. 😊
Yes to all of these things!
This is excellent and based on research . I am a nurse and midwife in uk and have suffered from Fibromyalgia for many years. I have research everything to aid my pain. This is fascinating and I have already started Thiamine. I wish you would put dosage. I’m now on Pregabilin due to pain becoming unbearable and has helped greatly but comes with its side effects which can be difficult to handle in my job. I also take magnesium and calcium glutinate . I have B12 deficiency and anemia due to gastric bypass 10 yrs ago. I have met many bariatric patients who have developed Fibromyalgia. I definitely relate to small fibre neuropathy and symptoms.
LDN (low-dose Naltrexone) of 2-3mg, taken at bedtime is a MIRACLE for Fibromyalgia pain
Its important to research the side effects of agamatine. It gives me brain fog, decreases working memory. Simultaneously though it suppresses impulsive and racing thoughts such as in ptsd.
Please search for the function of Magnesium L- threonate, it might help with your case
I was one of the first people diagnosed with fibromyalgia in BC. That was almost 30 years ago. I have had so much nerve pain and acute/chronic pain.
It turns out I have Ehlers Danlos Syndrome. There's 13 types but type 3 is the most common, Hypermobile EDS. My large joints are "double-jointed". Still considered to be a rare disease although 1/5000 peolle have it.
Common symptoms include chronic pain, fatigue, brain fog, stomach issues. I also have Mast Cell allergy and POTS.
Treatment for the allergy and my life-long nutritional deficiencies have helped me almost go into remission. If not for some injuries that are difficult to heal, I would hardly have much pain. Not being diagnosed for over 25 years destroyed my body. It is taking a lonv time to get well, and I won't ever be the same as I was in my 20s.
Allergic to gluten, dairy, caffiene, alcohol, the sun and all chemicals especially perfume. Gluten affects my stomach. Caffiene makes me nauseous. Alcohol gives me bad hangovers. Dairy was the biggest surprise. It increases my pain by SO much and gives me snaphylactic migraines, szme with perfum.
I believe a lot of "fibromyalgia/,cfs is a combo of an allergy to something or things plus s nutritional deficiencies deficiency, as stated in the video. I'm living proof. Since beginning treatment 2 years ago I am in remission from Addison's Disease, Hypothyroidism, Type 2 pre-diabetes and severe osteoarthritisin my of my joints especially my knees. I am deficient in B12, iron ,vitamin A, D, magnesium and zinc tor sure. I take all the essential vitamins and minerals daily and see a Naturopath occasionally for vitamin IVs and other supplements and antioxidants like Quercitan and NAC. I also beat most symptoms of long covid, twice.
If yiu have fibro, its a good idea to rule out Ehlers Danlos and Mast cell activation syndrome or other allergies.
I have hypermobile eds n fibro as well I call it my daily battle I am always in pain n no one gets it so exhausting I've gone broke trying everything under the sun
Doctors said I had diabetic neuropathy. Shocks above mid thigh. Waking me 26X nightly. Very severe, no relief. Read an obscure study. 10 day challenge: 1 full dropper of White Iodine in glass of water, daily. Day 4, a 30% reduction. This was a huge relief. By day 10 my shocks were at zero. Also hot flashes dropped from 13 nightly, to 3, and were zero in another week or 2. Other info said risk to thyroid, but mine was fixed. Continued treatment when symptoms trying to restart. 4x weekly 2 years, at 4x monthly year 5, but moving back up some, this month, as health is a little better that way.
Thank you, this is really useful. There is an autoimmune aspect, which I feel is the cause of Fibro being misclassified as a rheumatic disorder. I would suggest you that, and this does not argue your premise, that you cannot ignore the part of Fibro that is a sleep disorder. The context is there. This is not due to pain, but an organic reaction in the limbic system that does not allow for deeper level of sleep. Could you address this?
One of the best videos on Fibromyalgia.
I agree...❤
After going on the Jordan Peterson/Mikhaila Petersen diet (beef, salt, water) for 1 month, I started adding 1 food back at a time. I found out I was sensitive to all grains, dairy and eggs. Getting those foods out of my diet got rid of my aches and pains. A ketogenic diet took me to the next level in terms of energy.
Yup only Ted talk to be hidden basically.
Do you have a link to where you got this info please?
@@tanyawieczorek6603 Mikhaila Peter: ruclips.net/video/7fncJdVjy5U/видео.htmlsi=YZmLyh4RKAFzB1dL
Jordan Peterson: ruclips.net/video/HLF29w6YqXs/видео.htmlsi=69_NZg-TTAhh-iZj
@@tanyawieczorek6603 Here’s another with Chris Palmer who is a Harvard psychiatrist. He says a ketogenic diet works better for major psychiatric disorders better than any medications: ruclips.net/video/AuOn_0WTKYs/видео.htmlsi=wsA9AFIlcke7aYyq
@@tanyawieczorek6603search RUclips: carnivore diet. Avoid the videos debunking it.
Years ago I had both Fibromyalgia and ebv together. There was no remedy...I knew it was emotional, so I cried and cried and cried...6 months later both had disappeared!
I’m so happy for you. There’s definitely an emotional component.
Interesting
I’ve been crying for 47 years and it hasn’t helped yet 🤷♀️
@@CheapsKate77 Think of the crying as cleansing. Literally removing toxins and emotions from the body each time! Also, use the alchemy of the shower to was away negative emptions like sadness, loneliness, anger and replace them with joy, love, acceptance and excitement as you gently wash with soap. Let us know how you feel.
This is a super interesting and very informative video. I came down with GBS last November and after my recovery I became very sensitive to pain. 😞 I guess I am kind of still in recovery. I take vitamins D3 & K2, probiotics, magnesium, iron. I was taking a super B Complex for a while before I got hit with GBS and my neurologist follow up in January agreed with me that my excessive levels of Vit-B most likely helped with my super quickly recovery after the 5 plasma transfusions and one week at rehab. Well, that and lots and lot’s of prayers from many! 😊
Excellent video thankyou 👏🏻 I always said no to people who suffered with Fibromyalgia, who came to me for massage. I did not agree with that treatment at all, as I believed it would orly flare-up their pain even more. It may have benefitted them while they were having the massage, but not afterwards. As I always believed their complaints about the type of pain they were suffering did not stem from joints , tendons, muscles, but rather the Nervous System. With any disease or ailments relating to the body, it must firstly be treated at the root core, and then alternative method's to follow. Although Massage is wonderful and healing to the body, I do not believe it benefits Fibromyalgia patient's the way people thinks it does. It actually flares up the the nerves even more , not soothe and calm them down. Maybe later in the journey will massages benefit, but certainly not while there is a flare-up. I believe it aggravates it even more. People may disagree with me, but it is what I have learned and seen through the year's dealing with client's. Thank-you 🕊🤲🏻🕊
Glenafoleyfoley168……… Absolutely and exactly correct about massage therapy with FM!! A light touch massage does cause less reactive reactions to massage and very light massage can help because it seems to awaken the nerves and the stagnant blood flow in us. That’s great! I still have a day of mild FM the day after, but move Thru it okay. If it’s medium light massage, it is not light enough! It also helps to straighten ones posture up somewhat from having pain and dysfunction. Once every three weeks I’d recommend this. If not super light, then don’t bother with massage therapy if it flares up your fibro! Also, the human to human light touch you get in light touch massage can be helpful to release the mental and emotional pain we accumulate from being treated poorly by folks or spouses who don’t want to understand the multiple food and chemical sensitivities and reactions we have and our need for a cleaned up lifestyle. Not fitting in with lifestyle that they tolerate and process normally. Although, eventually those bad lifestyles will bite them back…..keep the faith! 😘
@@CoccazMom well said. Light touch often is more help than traditional massage when dealing with FM flares. With the idiots putting up high damage emf towers all over now, thus trend is only going to skyrocket, unfortunately. High emf leads to b1 deficiency which is related to many domino effect problems all because of the highly damaging emf signals. It affects animals and plants as well.
@@CoccazMom Thankyou 🕊🙏🏻🕊
How can you treat nerve problems?
@@thetony8959
It depends on the cause behind it.
I found out that I have a mutation in my dna called MTHFR which now tells me why I have had so much overall body pain. It is due to a lack of absorption of lots of B1, B12, B9.and other amino acids and stops the body from ridding itself from toxins ... what you are saying about a lack of B1 sounds like a pretty good theory to me. But you cannot just take thiamine or folate because the dna can't convert it. It needs Methylfoliate, etc. I can't explain it all here. But some say this is in 40 % of the population, which sounds more like some kind of a poisoning from the environment to me. DNA doesn't just mutate, something we were exposed to, my husband and I both have this and lived around loads of factories as children. I am curious to find out how this has happened.
If a person has slow COMT of even one of the slow alleles it’s important not to supplement with ANY methylated vitamins.
People are now saying to the detriment of a large potion of the population, that we need to take methyl folate and methylcobalamin. This is the worst thing a person with slow COMT can do for their many severe symptoms. Be careful what you tell people because methylated vitamins make many people suicidal.
Your body might have a hard time absorbing thiamine. That’s where benfotiamine comes in. Benfotiamine, which turns into thiamine once it’s inside your body, may build up to helpful levels more easily. I too had high levels of B12 showing up in blood tests. When a vitamin isn't absorbing it will show up at high levels so I started taking methylated B12. I also think processed foods is a big part of American's health issues. Look at the junk they put in it which is essentially poison.
Don't ford vitamin b8 b6 12 to yes this is what the problem is genetic food poison us especially if we have Asperger's ADHD hypomobility that's why they are not interested because big pharma want the profits we have seen nothing yet going to be mayhem in 10 years
@Antony Stringfellow Right?! I'm glad I wasn't the only one who thought of that 😂
Yup, my daughter called and told me results of the dna test for medical , actually pinpointing that specific gene ....hmmm isn’t that somethin’? And I said to her that’s one motha fucka! Lol
I had severe fibromyalgia in my 40’s, and was diagnosed with severe hypothyroidism and Crohn’s in my late 50’s. Both almost killed me besides statin drugs and extremely elevated levels of Triglycerides and Cholesterol and blood loss. I was sleep walking too. It took 8 years before my blood work came back to normal. I’m now 66, my blood work is near perfect and I’m on 9 life maintenance meds in the lowest doses possible along with dietary supplements. It sounds like a lot of drugs but none are controlled substances. The only pain I have comes from degenerative spine and disc disease from hard work with having Ehler Danlos Sydrome.
Please take calcium and vitamin D to help protect your bones. My mom had severe crohn's disease and all the steroids they had her on cause painful osteoporosis. Not one doctor ever told her to take them. We didn't have the internet back then. I feel for you.
Dr. Barbara O’Neill shares a lot of information and remedies.
Like applying cayenne pepper to the soles of your feet for the treatment of neuropathy.
Blessings and healing energy to all ❤
We need you to write a book.I know that things that you study are changing quickly as you are doing cutting edge work.But we really need you to write a book
YES! I am so happy to see this video. This totally makes sense to me. Am starting agmatine - hope it helps.
Everything you said of the symptoms I have had for decades come to find out my lymphatic system was blocked and my sinuses were going crazy. Once I addressed my lymphatic system with massages ,exercises. Changed my diet, I got better. I also cut down on my smoking dramatically and I’m working toward quitting so I hope somebody sees this and tries. It is save my life.
Cindy try these too, switch all oil to only Trader Joe's oils, any, California olive oil with a blue butterfly only. Grapeola grapeseed oil with blue butterfly only. None at Costco, even if it says organic .
(That was about not organic ca no la.
Drop anything of corn that is not white corn. Got that? White corn , fine, others no. There is organic corn syrup now, if you are a candy maker.
Cheese and dairy hit you if the cows are on jeee emmm 0h's in yellow corn.
Check wheat flour for 2 to 6 weeks for sinus impact.
Throw out the lye dishwasher detergent. If well rinsed you may use Borax improvements 15 days and done.
Just an FYI: There are several RUclips videos on the Chi Machine; it has helped me with my lymphatic system.
I’ve known this for 35 years, the same length of time I’ve had fibromyalgia. I’ve had severe paresthesia in my whole body to the point I couldn’t stand or walk. The head neurologist of USC neuromuscular center patronizingly told me he thought I was just lonely. Last week I started taking benfotiamine supplement .
Hello my neurologist also said that everything(fingers numb) is caused by my anxiety(rolleye) may i know how that benfotiamine is working out for you?
How is it going?? Please tell us the news! 😊
@@Mantras-and-Mystics Nothing has changed and i took a B 12-B6 supplement 😓 how about you?
PLEASEEEEEE
FM 30 +years, had 8 year of physical therapy+chiropractor, in remission 2.5 years now on carnivore diet with no coffee or alcohol. I had spinal injury from a fall at 11 years old.
What put you in remission? Was it the carnivore diet or something else. I have fibromyalgia and it keeps getting worse every year it’s hard to live like this.
Wooow! Please do respond I want to know!
The best critical medical advice is always on social media, it’s unbiased well researched factual and ethical. A bit like the Joe Rogan podcast I don’t know how many researchers and fact checkers they have but they are accurate every time. What respectable medical professionals wouldn’t be on social media. Thank you
I have had fibromyalgia since the early 1980s. I had nerve conduction tests done by a neurology office since I now really need disability help through Social Security. I do indeed have small fiber neuropathy. This video was a real "aha!" moment for me. I am going to try the agmatine sulfate to see if it helps. Being in pain for the majority of my adult life really sucks...
Hi there! This is quite an interesting study and informative video! Just to share here some info which might be helpful to those who read this...spinal cord injury and suffered Fibromyalgia many years in the past, but never took any medicine for it, instead I did massive doses of Vitamin B complex and of course Thiamine and doing wonderful now. I even used Agmatine before but I quit that and kept on taking B complex along with a few other natural supplements, it works for me. I can confirm that you are right on the spot with your studies and that your videos are quite helpful.
Thank you!
May I ask why you stop taking Agmatine and what brand of B complex are you taking? Appreciate your help 🙏
@@moniryousefian8782 That's a good question and deserves an answer, I'll be glad to answer to your question hoping it helps.
Agmatine Sulfate was good for just a short period of time for me, it helped a bit when it did, but I soon began to notice a fragility in my vessels and veins and even my heart was feeling fatigued from taking it. Agmatine S. makes the blood more fluid and some of us may needed more than others and some don't, we are not all made the same, hence it is a good rule to either consult a good naturopathic doctor or monitor ourselves mindfully, it's not easy to detect the changes that our body makes when not fully connected within, I cannot stress it enough, when we want to do things by ourselves the inner connection comes first.
As far as the B-Complex goes, I take different B-Complex and other supplements, as long as they come in a natural form and not in a synthetic form, this is another important factor to take in consideration at any given time. Most labels won't mention anything about the product form or original derivation from, labels can be very deceiving at times. It took me a few years and many naturopathic books to learn just about this topic. Some supplements claim to be natural and some of them may very well be but then when you check the inactive ingredients you might find out that the inactive ingredients interact with the active ones, so you really need to pay close attention to every details. I personally found Standard Process to be a good reliable source and yet, that is not the only source; in fact, I use other vitamins and supplements, I supplement more of the Thiamin, Pantothenic Acid as well as others. My Fibromyalgia comes more from the nervous system being hypersensitive and the damaged spinal cord.
Not all Fibromyalgia come from the Nervous System, so it is important to be able to explore the nature of the dis-comfort and what generates it.
I don't know how far I can extend my knowledge and experience in here and even then I came to realize that sometimes what works well for one may not work for another. For instance, just to give you a better idea of what I am saying here, for my life companion I had to put together another protocol, indeed we share only some of the supplements in common but for some others what works for me it doesn't work for him and vice versa. I spent many years studying herbology, naturopathy, Ayurveda, TMC etc. My best suggestion for a good blood flow and good energy is that there's nothing better than Qi-Gong practice, yet as far as the vitamins and supplements goes, I personally stick with natural only. Elliot's studies and advice are always a great addition to someone's own knowledge, but they need to be taken for what they are, "knowledge" to apply them properly it requires wisdom. I hope this helps you and whoever happens to read this.
@@shaktiveda7041 Absolutely agree. Learn for self and others how to do applied kinesiology, muscle testing. Muscle fibers react and tell all.
So the high dose vitamin B stopped fibromyalgia pain for you? And are you still taking it?
@@youknowulikeit9589 In all honesty, yes, it worked, but I also had to re-caliber it at some point. You see, our bodies are not all the same, we are all different and unique.
What might works for one might not work for another and vice versa.
Also, when it comes to healing holistically there are a lot of factors to take in consideration; also, it is important to remember that too much of something can cause an even bigger imbalance somewhere at some point or stage in life. It's not only about vitamin B, but what type of B, what's the nature or source of that vitamin, dosage needs adjustments eventually, the body also requires a balance between vitamins/minerals/amino acids, proper nutrition, exercise, etc. Of course, it is not one thing only. You probably by now have too realized that our bodies are more complex than just double on a certain type of vitamin and you'll be okay. In the same breath, I would encourage everyone to learn, embrace, and experience for themselves holistic, naturopathic medicine over the allopathic med. The body always wants to heal, unless its own time is expired. When we trust mother nature and its innate intelligence the healing can happen and it leaves no side effects, while allopathic med. on the other hand, is what I would define as a "patch work." With allopathic med. there is only the illusion of a temporary relief, but in actuality there is an energetic block happening somewhere else and it will eventually show back up at later time, sometimes with revenge hence, that is what is commonly referred to as "side effect."
Last but not least, it is crucial to understand that true healing might not happen in just three days, it depends what type of issue we're dealing with, the will power and the patience that the person has in regard of his/her own issue, the nutrition and so many other factors, however, it is the best route to take when there is true commitment to heal and to become whole again.
I've had Fibromyalgia since my young 20's... I'm nearly 57 now. I have pain constantly sometimes it gets fired up in some areas for long periods of time. I also have Raynauds, type II Diabetes, Dercums Disease and ADHD. My hands are normally up to 5 degrees hotter than the rest of my body and my arms can be cold while my hands are hot. If my hands get cold then my whole body is freezing. Go figure. I struggle with trying to sleep as I am as I often say "The Princess and the Pea" as anything that pushes or pokes on me will irritate me ... light bothers me when I try to sleep... most of the time I'm just exhausted.
❤
I can so relate my hands and feet are boiling, light gives me terrible headache. I've been trying magnesium malate, bamboo bed sheets and intermittent fasting. It's a roller coaster ride most days, I feel hormones are a problem too but I can afford doctors for that 🙃 it's a lonely path
@@buffy2658 I've been taking a Magnesium with all 3 Citrate, Malate and Glycinate... I take 3 daily... I'm still so tired I can hardly stay awake... but part of that is due to working 3rd shift... so they tell me. I invested in a light therapy light... it doesn't help.
@@buffy2658 I wish you well with all my heart!
I don't know if you will ever read this but your problems sound a lot like mine Raynauds, Sjogrens etc etc - anyway 3 years ago started using stinging nettle tincture for pain and it has been a life changer. Also use 'electrolyte powers' for the energy problems and that works too.
I started b1 and niacine, this is verry interresting. The flush works magic. The heat goes too all the tenderpoints. I will continue, the heat and itching is a bit scarry at first. I feel better after the flush and my nek schoulders feel much better!
Also take nac with clycine ❤
Take the niacin with a meal - you don't get the itching, redness and flushing
Yeah, the flush may be a necessary function to help your condition, maybe add Lions Mane mushroom to that to help nerves to repair themselves.
This speaks to me. I was diagnosed with FM even though I didn’t fit the actual diagnostic criteria. I almost perfectly fit this.
Here's how I healed *myself* from fibromyalgia: a big focus on proteins and mood focused diet: kale, proteins (chicken, eggs, beans), rice, yogurt salmon and chia seeds (omega 3-- I realized quickly my pain emerged when I was crying for hours or even a little, so yes it is in fact coming from the brain, and the signals are being experienced as physical pain in the muscles). It began as itchiness. That's how I know a flair up is coming. That itchy sensation then turns into electric shocks, and old scars from shaving that are GONE begin stinging again as well. Which is significant, because it means the body remembers injuries even small ones on surface skin layers. It ALL is felt. I do believe it is a combination of muscle tissue, nervous system, and brain signals. Emotional centers logging emotional pain in the brain are literally being translated into physical pain. Not fear, grief.
Reducing sugar greatly helps, as well, I realized pasta and bread is like eating nothing. It doesnt stop me from being shaky and weak. It was such a hard journey but I'm 90% back to being me. I HAD to make myself stop thinking any negative thoughts that could lead to crying. Otherwise I would get electric shock type sensations. Doctors were ZERO help. The good news is though if you cut away all stress and eat healthy food (lots of it) constantly, you can get better. It was hard because I had no apetite from grief, and hate cooking. I also walked a LOT, at first just on grass and gently since my bones were so fragile. I remember almost crying seeing a woman on the bus with fat wrists, I was so jealous she was healthy and strong. Life changing experience. I believe in you. You need to isolate yourself from the people who make you focus on them instead of yourself. Fibromyalgia saved my life, in a way. It was like my body gave me a huge wakeup call to end all things that are wrecking my life.
You've described symptoms I have also that I've not heard stated by others including itching, emotion, stress, crying as triggers causing what feels like interplay between muscles, neurons, and brain/spinal cord manifesting as neuropathy symptoms in my lower extremities, the worst of which is spasticity and seizure-like activity in my legs from toes to hips. My symptoms also flare with too much activity, like my stairclimber or stationery bike, yard work, too much standing, etc., but are accelerated and on fire when stressed. Thank you for your post....I've also drastically changed my diet and make my own cannabis MCT oil which effectively manages my spasticity. All the best....
Same group , no help. Diabetic neuropathy advanced to shock awakes 26 times a night, up to thighs . What helped: White iodine, a full dropper in water daily for a 10 day challenge. Day 4, 30% drop in symptoms. Day 10, gone. I needed 4X a week first 2 years, 4X a month now to maintain zero symptoms. Put away the cane, back to hiking and swimming down the river. Previously, I had needed help down the stairs, and out to the car. Advised wreck thyroid, BUT mine fixed instead. This was m e r c u r y.
Also discovered pure Epsom salts is pure magnesium and in water absorbed best, (pills were mag Asporotate as best absorbed). Stirred a pinch of pure Epsom salts in cold water, 3 big sips are 1 dose. Needs go up and down with stress. Biggest stress pesticides and jeee emmm 0h's.
I asdo start with keto and clean diet. I used B1 Benfotamine, and start on Methylcare ftom metagenix. I have the MtHFR gene mutation and find this was the best supplement I ever took.
I used to take agmatine sulfate pre-workout, dosed at 1 gram, but I take it now in tandem with lithium orotate and high dose inositol for depression. Works beautifully.
Agmatine Sulfate
@@user-ky4pq7nk9e yep
I love lithium orotate. It stops spiraling thoughts for me and calms down the brain.
Also boron has a very quick effect and gives me a positive lift in a very short time. I've found out it releases bound testosterone, makes vitamin D and DHEA levels rise.
Also I've come across that lithium orotate is used transporting B12.
@@ollymounara605 I use a cocktail of lithium orotate 5mg, 1g agmatine sulfate, 5g inositol powder, P5P, zinc and magnesium. Spiraling is stopped dead in its tracks.
I was once prescribed Wellbutrin and it made me feel like dog shit, and it killed my libido. Not the case with this stuff. Way better than Wellbutrin, IMHO.
@@freepressright I asked for welbutrin myself at some point but didn't start it after reading about all side effects.
After seroxat and ritalin use both short duration and negative effects besides some positive bits I started looking into natural ways to influence neurotransmitters.
After a while I got hooked on watching functional medicine video's. Learned so much. Really glad I found a different approach to health.
I found out i have the MTHFR gene mutation which prevents all vitamin Bs from being methylated and used by the body. Supplementing with methylated vitamins and Low Dose Naltrexone has been a game changer for me. Especially the LDN.
Where can I find those? I have the MYHFR and I’ve known for de cause that my body doesn’t convert the bs to energy.
How did you find this out may I ask?
This should be funded by public health system :( supplements are so expensive in new zealand
@@krystal3822 an oral cheek swab test. My doctor did it in the office. But I think there are tests now you can order online.
@@ShelleyPolarbelle ldn stands for low dose naltraxone it is a prescription medication in higher doses it helps w the effects of withdrawal from alcohol or drugs in low doses it can help w pain and insomnia like that in fibromyalgia.
Hi everyone😊 Thanks for all this info. I’m in chronic pain for years. Still searching for answers. This is so helpful.
Still trying to figure out my first diagnosis of fibromyalgia at age 23/24. I’m 56 now and still not finding the cure. Or much aid.
Maybe it started due to a whiplash and then a concussion being thrown from a horse at age 13/14. After that I had a work accident lifting bags and I was toast after that - the pain expanded & worsened over the years. And now it’s taken over my body with Vagus nerve issues directly effecting my gut. I have allergies, and hypothyroidism, no gall bladder, and diabetes 2. And NAFLD Liver disease.
I did the medical medium cleanses & then diet. I’m less in 1 year I’m sicker than ever before! = Oxalates!!
I’m trying carnivore & just started your vitamin B protocol. And added more you mentioned above.
Thank you; you’re spot on brilliant & I’m loving every video and every word you speak!
Have you noticed any improvement. I’m considering doing the carnivore diet for my FM
Has the vitamin B made any difference? I have fibromyalgia too I’m considering trying this
@@youknowulikeit9589 ok so carnivore did NOT work. I tried it for 3 months. It made my A1C shoot sky high to 7.1! I did not feel better at all.
I went back on the veggies only and again got sicker within 6 months.
So now it’s 3/23 I’m doing a little of each; meat & light carbs & a good amount of veggies. I now honestly do not think Oxalates are a problem or the problem at all.
I was thinking I had D2 insulin resistance which it’s only 2ndary. And I thought I was treating Epstein Barr Bc I had active infections for years and years. But now i think it’s gut related with no gall bladder - so I need bile salts + I need B HCL.
Now I am getting up to a higher dose VIT B1 and trying that Angle much more too than what I listed above! I’m getting good effects & no more constipation from Hell! My stomachs happier and the B1 seems to be helping a lot too. I just started this month 4/23 + end of 3/23 doing the high dose b1 at 600mgs - I may work it up more! Like 1,500. It’s helping all over pain & nerves are coming back along with much less coldness in my body! Crazy life. WE have to heal ourselves Bc the controllers don’t want us healed nor cured. They want us sick on their system. That’s what I discovered via research and living w/ Fibro for 30 years!!
@@youknowulikeit9589 YES DO IT!!
@@youknowulikeit9589have you tried
Very informative. I suffer from Fibromyalgia for 22 years of which I was in remission for about 10 years.
Have you ever tried a keto/carnivore diet?
Which supplement you are taking
How are you in remission? 🤔🙏
What worked for you?
@@youknowulikeit9589 Ben gay, rest, breathing excercise s, right now I am trying a nothing but spinach , matcha cucumber lemon juice smoothie. Still tired. My doctor doesn't want to put me in to a clinical trial. 🙄🤔😟🤷 Drugs don't work!
Thanks for the information contained in this video it's an eye opener and I will be doing something about the fibromyalgia I have had for years 20 years of pain. God bless you for giving me information to ask questions
I had NEVER heard of agmatine! Thank u!!
Me either, but I take L-Arginine every night because I read somewhere it helps with sleep...and it does seem to help my sleep. Although, I have to wonder if there's some issue with my mitochondria turning it to the Agmatine.
@@creatuitiveguru is that what Agmatine is? ....L-Arginine?
@@Mortthemoose What is arginine? Arginine, also called L-arginine, is an amino acid used by the body as a protein building block. It's also an intermediate metabolite in the urea cycle and the nitric oxide cycle.
Oh my gosh…. This is very interesting. I have had both FOR YEARS and never knew they were related, but have often wondered. Both are so painful and I have spent many days in bed with terrible pain. Thank you.
No surprise to me. I awake every day to awful pain which has got worse over the years (since the menopause when it first came on) and yet I have seemingly nothing wrong with me and no arthritic joints. I remember telling a doctor I felt sometimes like someone was digging pins in me, especially my limbs and he looked blankly at me. I've never found anything that helps with this.
I hope you take some Mg glycinate, bednfotiamine, methylcobalamin, and some MK7 along with your daily dose of sunshine :)
My own summarized research on healing pain: The body primarily needs good fat and cholesterol (grass fed butter, avocado, coconut, oily fish, pasture eggs) to feed the cell membrane, keep it supple, and to feed the brain. Also, water and fat soluble antioxidants, vitamin c rich foods (eat them with fat) to nourish the mitochondria and cell watery environment. Tip: Alpha lipoic acid and aloe vera juice carry vitamins into the cells. Additionally, the nervous system is an essential pillar whose sheath requires methyl b vitamins + additional b1 in the form of benfotiamine. Tip: Combine with quercetin for anti inflammatory boost. STOP drinking cow milk and yogurt, nobody needs those, they destroy your joints and your skin, switch your cheese to goat and sheep. STOP buying gmo soy, canola and cottonseed ladden processed foods, start cooking. Eat fruit, fat, proteins and greens rich in minerals. Clean up your bread, quit the pasta. Cleanse the pathways with turmeric, the liver with dandelion or milk thistle. Sorry for the admonishing sounding tone 😅 but I've been helping others heal for 20 years and I've seen what poisons the body and what doesn't. It pains me to see the pain in the comments 😱❤. People have the ability to claim their healing process back and get off the sick train if they choose to do so, even though the journey might be felt differently by each and take a different amount of time for each. We have to unlearn what hasn't worked so far though, and adopt a new learning process that listens to the body. STOP and ask yourself: are you truly doing your best or are you participating in your own abuse? We all get a chance at a clean slate /plate. Love and Light 😊💜💫
Yes we know all that, but where to get all that goodies? Unless you live in country side and grow or are rich to buy it all from around farmers.
Can't even trust organic products in supermarkets, they are organic!!
But living in a block of flats or a house on the city's....
@@aldastroud9671 what do you eat over 7 days and what country do you live in?
When taking Alpha Lipoic Acid (ALA) be sure it is the R-type. Most ALA's are the S-type which is synthetic and has less bioavailability. The R-type cost a bit more but since the body utilizes more of the dosage it ends up being cheaper. The comments on fats is real. Fat has been villified by the Medical Mafia (FDA, AMA and Big Pharma) but good fats are essential. The brain needs fat. Take benfotiamine with fats. Good advice all around. Thank you
My daughter is allergic to goats milk. 🐐 it's not for everyone.
@@marleneholloway7775 Correct, it's not for everyone and because it's not essential to consume animal sourced milk, you could even consider that a blessing in disguise or at least a saving on your budget. There is no need to replace it with cow milk. That said, if you see this rather as a curse, be aware that allergies come from a gut imbalance causing absorption issues so you may want to look into foods that deliver prebiotics and enzymes. Wishing your daughter good health 🤗💜💫. Be well.
Edit: to clarify: allergies come from a gut imbalance when they are not generated by the food itself being loaded with allergens and toxic components.
Thank you for all of your podcasts on B1 Thiamine and other nutrients we may be needing to assist us in our lives ...Ive tried the Thiamine sublingual just yesterday taking 1/2 tab and noticed a great difference in my sleep last night!! Thanks again.. I also sent your great podcast news to a friend that has Parkinsons so hope it helps her!!!
Which product and thiamin form is sublingual?
My 3 go-to are R-lipoic acid, omega 3 fatty acids, and chelated magnesium.
Colitis and CF since 2009 after a shot. Fibro diagnosis 6 months ago. Knew nothing of this condition until then, but realised I had been suffering from it for just as many years. Started b1 3 days ago. Will let you know. 😊
@STAR W everything was ruled out after many xrays MRI , blood tests.
True, neuropathy can cause fibromyalgia, but you can also have fibromyalgia without neuropathy
I’ve been labelled with fibromyalgia for ten years and have been active in research and seeking answers. I have also come to the conclusion that the pain is neurological.
Why would that be? Low stomach acid causing mal absorbtion and poor microbiome is my best guess after many years of digging for answers!
I’ve cured hiatal hernia through diet and the use of digestive enzymes, using advice gathered from various sources (including nutritional therapist and naturopathic doctor). The pain I feel seems to radiate along neural pathways.
Have you tried the books by Dr Sarno?
@@shughy1 Yes, a few years ago. I’ve since worked through a bag full of trauma. Daily I ask myself what is this pain telling me’. I have learned a great deal of patience:)
There is a spiritual angle to this.
Thanks Elliot. Great video. I have a chronic pain syndrome and have suspected that my problem stems from some sort of neurological re/cross-wiring of my nervous system, perhaps in the spinal column.
A lot of what is mentioned in this video makes sense.
Looking to get Intrathecal stem cell treatment in the next few months but will be exploring some of what you mention here to see if it helps in the meantime.
Will check out your other videos too.
In one reading of fibromyalgia it was said, in the spinal cord there is a substance named Substance P, and it is too high in FM persons. It's called substance P..